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Ethical Research and Equality, Diversity and Inclusion Trailer

Equality, diversity and inclusion in research. More than a tick box in a research ethics application.

The Participatory Research Network (PRN@TUoS) and the 小欧视频 Research Ethics Committee (UREC) engaged in a project to discuss the most appropriate way of advising on and addressing issues of ED&I in our research ethics policy and processes.
Statue in Brussels
Statue in Brussels

IRDiRC 鈥 (Re)Act: A call for open data and more repurposing for rare disease medicine

By Matthew Hanchard
Matthew Hanchard speaking at World EPA Congress 2025 - Amsterdam
Matthew Hanchard speaking at World EPA Congress 2025 - Amsterdam

World EPA Congress 2025: The landing of AI and growing appetite for transferable exclusivity

By Matthew Hanchard
Themes featured in the concluding discussion with all workshop participants about existing knowledge and next steps, including: The more you know the more you realise you don鈥檛 know Keeping communication simple No clear process to follow Every project is bespoke in its data collection Intellectual property rights are built on colonial logic and western assumptions Identifying knowledge gaps Hidden knowledge in the university Old processes that don鈥檛 mesh with PR
Key themes from the workshop participants鈥 discussion of challenges and next steps. Visual scribing by Nifty Fox, 25 June 2024.

"Negotiating the right to be named" 鈥 Reporting on the PRN鈥檚 Intellectual Property Rights and Participatory Research Training Workshop

On 25 June 2024, participatory researchers from across TUoS sat down with representatives from research and professional services to untangle how intellectual property rights and data protection legislation affect research design and partnerships.

Poster reads: NORD - Overcoming Insurance Barriers with Rare Disease

NORD living rare, living stronger 鈥 Los Angeles

By Matthew Hanchard
Jin Ding

Reflecting on the 2024 Global Rare Disease Research Symposium

By Jin Ding
Poster reads:2nd international conference on disability studies. Disability Matters, Critically examining disablism and ableism. 19-21 April.

2nd International Conference on Disability Studies: Disability Matters: Critically Examining Disablism and Ableism

A collaboration between the Aristotle 小欧视频 of Thessaloniki, Faculty of Education, Department of Primary Education, School of Education, 小欧视频 of Sheffield, and iHuman, 小欧视频 of Sheffield

Amsterdam flag

International Workshop 鈥淒eveloping New Models for Pharmaceutical Innovation: towards a Mixed Economy鈥

We are delighted to invite you to an international workshop on聽Developing New Models for Pharmaceutical Innovation: towards a Mixed Economy. Amsterdam and online, Monday 15 July 10:00-17:00.

Event logo - World Orhan Drug Congress - Boston 2024

World Orphan Drug Congress USA - Boston 2024

The Orphanisation team spoke at the World's leading pharmaceutical conference on orphan drugs. Matthew Hanchard discussed the value of social media data for diagnosis and Jin Ding covered growing US-EU disparity between drug submissions and approvals